Friday, March 16, 2012

We're everywhere

Every Thursday, Ben andI go swimming at the JCC. As we head to the family changing room we need to wait for the tween special needs social group. Their group staff are assisting them with changing. Can I tell you how freakin cute each and every one of them are. and completely unique. When you think, a lot of NT all wear the holister, juicy, try to blend into each other. Our guys don't hide or hold back anything! lol
So, we finally get our suits on, and head to the pool. There's a special needs swim lesson going on with approx 8 kids. They looked to be 8-12. And typically special needs = autistic.
I glance back to see what the temp is of the pool on the whiteboard. I find that out, along with from 6-7 special olympics will be in two lanes of the main pool.
There;s a sign in the entrance of the JCC saying "A place where kids don't have to feel special" Isn't that awsome! Our kids really weren't standing out, being singled out. There was a community of us. And while there were also several NT kids, I have to think exposure to this degree will make them more accepting and aware of different people walking beside them.
Way to go JCC!!!!

Monday, March 5, 2012

I want to scream

I love to give the finger to the universe. I swear I can do it, and there's no reprucsions.
HA! Every time a new drama/trauma comes along, I'll say "What else could happen?" My husband warns me not to do it, but... I laugh and say "Bring it on!"
So far this has gotten me:
My oldest child keeps going to AA. He'll go then stop. but, he keeps going back. He tells me that if he drinks, he REALLY drinks. He goes to meetings and wants to avoid putting in the 20+ years many of the other members have gone through and just quit now. His father l.o.s.e.r! tells him he's 23 and isn't going to quit. That's why I left his sorry ass! It's been 17 years since I dealt with that plague. Over the years, I mellowed, and forgot what an asshole he is. Never gave a SINGLE dollar toward his kids. Another who could whine, cry, about losing his boys, but did he put down the bottle and get a job to convince a judge he deserved time with them? NO! That would have needed effort, and he looks so good as a victim. Since the two older boys can now contact him when they want, they'll inform me of conversations with him, and I recall..... What an asshole!
My second oldest has mental health issues. As a teenage, he was intimidating, impossible, I can not express enough.
He quit school. I would go up, pry open his door, and try dragging a 6 foot, 200lb adolesent out of his bed. He would scream/threaten/push me out of his room. He would become physically agressive with my husband. I can't express the nightmare. The cherry on the pie, was when the police came and informed us there was nothing we could do until he turned 18. This was done in front of him, and you might as well of said let the games begin. Because after that... Hell was on earth.
I have many regrets about this time. I was concerned about the neighbors thoughts, etc. If I could go back in time (Oh genie please!) I would call the police every single day he refused to get out of bed and go to school. I would invoke any institution I could that would not allow his poor behaviour to get the results he looked for. I make no excuses. At the time, Ben was being diagnosed, my husband lost a job, we were on the border of divorce, money, you name it. I think I couldn't handle another thing.
He doesn't live with us anymore. He lives in a home that helps mentally ill kids. I don't know what to make of it. I swear I think sometimes he's living a self fullfiled prophecy. His father is on medication and disability. He was not mentally ill when he lived with me. An asshole YES. Mentally ill, No. The father's father. incredibly abusive, to his wife and children. Mentally ill? I don't know. An asshole... YES.
I don't know what to make of it.
Ben has autism. what more is there to say about that. Most times, I deal well. for whatever reason this weekend. I kept thinking, we're so not preparing. I was 38 when I had him. An older mother. Now with special needs, less time to be with him, less time to prepare. I quit smoking last year to try and increase my time with him, but what about financially. Like a couple of idiots, Brent and I go out to dinner, lunch on weekends, we haven't put away a single dime.
How is he going to live after we'er gone? Is some 7.50 and hour employee really going to invest in him? It's killing me. And like all bad habits, we're going to have to change our current ways and start socking it away.
Now, my mother calls me on Thursday and says she has a lump. Friday she goes and gets a mamogram and tells me she has breast cancer. I have to say I'm shocked the radiologist would diagnose her. but...
Tomorow I go to the surgeon with her to see what's up.
Her words to me are "I'm going to have to move in with you"
Keep in mind, she's been on unemployment for 2+ years. She left a job she had for 20+ years, that had no retirement fund, and she had no savings. She's run out of unemployment and can't afford her rent.
I feel like a corpse laying in a field with crows pecking at me. Really? Does she not feel like I have enough in my life right now? Has she looked for job, looked for cheaper houseing, done anything?
Am I really going to have to take this on too? Her easy answer is come and move my stuff, and take care of it so I don't have to. FUCK!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I have a lot of questions right now, but the one question I'm not asking is what else......

Wednesday, November 30, 2011

I crack myself up!







I just re-read the post of when I got Jenks (dog 2) That was damn funny!





Thing is, not much has changed. He is still insane! I think he's part rabbit, because he has so much energy he actually hops. He's filled out, and hasn't had an accident in our house since the begining. Thank God (deal breaker)





He is fantastic with Ben. Fletcher is not needy and probably a little full of himself. Jenks... we refere to as our junkyard dog, and quite frankly appreciative of everything.





Ben likes to have "Birthday parties" We get a small cake, put in the candles, sing to whomever we can think of (usually one of the dogs or a book character) wear hats, and have a grand ole time. Jenks is fine with the hats. haha. Fletcher has more class. The other night, Jenks was more then happy to oblige, until Fletcher couldn't take it, and snatched the hat right of his head.





Dog are funny as hell.





Ben. Ben is doing well. He's started to sing, which I think is progress. He sings, (not well) (get's that from me)





Favorite songs are Happy Birthday, Bob the builder, and twinkle twinkle. I enjoy each note and verse. He's begun to get homework. A letter he needs to trace (about 20 of them). An insight into his thinking, one day he didn't want to do it, so he drew a line through a whole section of letters. I told him we don't do that, and he responded with "Ahhh he's so cute" Player be playin! Can't blame him for trying. What else..... He's still sleeping in our bed. Between 11:30-1:30 the door alarm will go off (we have a sensor door bell that goes off when he leaves his room. the sensor is plugged in to our room, and has been a godsend! Why is it godsends are usually $19.95?) I can't say we mind. We've gotten used to it. The only unholy part!!!! That sucker GRINDS his teath. Wakes me up several times a night. Dentist says it's no problem, so I have to believe him, but talk about nails on a chalkboard!!!!!





We went to see his Dr at CHOP a couple weeks back. Like clock work we were going every 6 months. I may have said it before, but I wasnt' sure why. We'd have a conversation, they'd check his weight etc, and that would be it. This time the Dr asked, "what can I do to improve your lives?" Well, if she doesn't have a magic wand, or a crystal ball, really nothing I could think of. Now we'll only go 1x a yeaer.





We've gotten Ben into an excellent summer camp throught the JCC. It's called open hearts open doors (I think) Children are mainstreemed with all campers. They are given an advocate (one on one) and particpate in everything typical campers do. They have swim lessons and free swim each day, a lake with one of those tramplines, a water slide, etc. He'll go there instead of the extended year school. When I told his social worker, she let us know there were several children that go to the camp, and therapies are offered during the summer. The bus would pick Ben up, Bring him to school for OT and speach, and then he would be bussed to camp. Best of both worlds.





Me. I have an appointment tomorow at University of PA to get a second opinion for that whole MS thing. wheeeee!!!! It took 6 months to get the appt, and my guess is, another waste of time, It is what it is, and be done with it. I do feel good. It's funny because I think I must have had it for a while and never known. I'm pretty old for it to be a new thing, but now I notice things. I get tired, but will snap out of it. I feel dizzy sometimes. All and all though, really no complaints. God willing, I'll be 89 and shooting that stupic needle in me each day still saying "doing well!"





I have no choice. As all parents of kids with special needs know, I can't die. Ever.





Till next time!





Thursday, September 15, 2011

a dirty little secret

I watched a U-Tube video today that had me in tears.

http://www.youtube.com/watch?v=1iSlok6muY0&feature=player_embedded

Think before you speak. So easy to say, so easy to forget. I watched it, and then decided to forward it to others. "Others" consisted of quite a diverse group. Of course there was my husband, but along with him were several co-workers. Some who may get why I would send it, others who probably thought.. "What the Hell?"
I even had a reply of "Why is the queen of sarcasm suddenly getting so sincere and sentimental?" The dirty secret is..... I was torn about sending it out. It was emotional to me, and choosing who to send it to... little do they know, but they were all chosen for a reason. Whether it was because I could see them using the video to teach someone else, they had small children they could teach, or whether it was because I had heard them use the word in the past.... all were chosen for a reason. I almost just kept it to myself and didn't want to use it, deal with it, talk about it..... Sometimes it's hard
I sent it to Bens teacher, to my old director who's wife is a teacher, It went to three states.
Is the idea of dropping the "R" word new? No. Lot's of movements out there, sign up and pledge, etc. but this teenager crying over the ideas others have of her brother was heartbreaking.

I see the world has changed since I was a teenager. I'm 44 now, and when I was in high school there were no inter-racial couples. I remember 1 gay classmate in a high school of thousands.
Today.... these things don't even seem to register to teens. It's so normal (at least in my area) There are several inter-racial couples, and I work with many teens, with a percentage being gay. None of this decides whether they are accepted. They don't seem to need to hide it anymore. And of course I think thank god. I can't imagine the gay classmates I had who were too ashamed of themselves to live a life, (these are my beliefs) that they were born to live. Life is so hard, and to have to fake huge chunks of your life.... exhausting.
Anyway, my hope is that people continue accepting differences. Where interacting and accepting someone that may have been considered a dork or "retarded" 25 years ago, there continues to be a push toward individuality, whatever that may be.
There will always be shitty people out there. That's a community, but at Ben's school I see kids from 6-12 who enjoy Ben, make an effort with Ben, and they'll never know how grateful to them I am.

Wednesday, August 31, 2011

mmmmmm..... dog......



We got our dog a dog. Stupid huh?
I think our dog was even saying he didn't want it. Either way, my husband (yeah you know the type... I want it, I want it, but I'll not walk it or clean up after it), decides Fletcher needs a pal. It is true that we are not the jogger, biker, get out there and exercise type, but then again, neither is Fletcher. Guy likes nothing better than to sit with his face pressed up against the AC vent. He looks like he has asthema, when in fact all he has is "fat-ass" I think it's contagious, because with the exception of Ben, everyone in our family has it.
Anyhoo... we go to the pound and ask for a medium size dog. Well... Jenks is not what I would consider medium. He's 10 months old and 50 lbs. Can I tell you he's as skinny as sh*t! Vet expects him to put on another 20lbs. 70lb dog does not = medium. When we got him home he was coughing. We thought Kennel Cough, which will right itself, but after 2 nights of hacking we take him to the vet. While we're there Brent and I are congradulating ourselves on this well behaved dog we got. (1/2 price by the way... the shelter was having a sale)375.00 dollars later, 2 antibiotics and a cough medicine.... wtf! Well.... we did not get ourselves a calm pet. The thing was sick. 36 hours into antibiotics and he went nuts!!!!
He's getting better. We've had him snap at Fletcher over a bone (I threw it in the trash), peed on our floor.... Drug his ass out every hour on the hour to teach him the right place to do it...What was I thinking?
Everday, I brace myself to walk in the door, knowing the two nuts waiting behind the door are going to come at me fast. mmmmmm you know you're home when you can smell dog!

Friday, August 26, 2011

Hurricanes.... phhttttt!

Live with a whirling dervish and you wonder what all the fuss is about? I have to say, I live in the Phila region, and the newscasters are constantly trying to get ratings with the weather. Last weekend ( I couldn't make this sh*t up) John Beloris, the ultimate ass is saying he's never seen anything like this on his radar, in all his years, blah blah blah. It consisted of a 2 hour thunderstorm. Nothing exciting, nothing momentous, just a thunderstorm.
Now this week... Irene. Which happens to be my mothers name, and yes... she can be quite..... welll, I'll leave that for another day.
Anyhoo... my husband and I are pretty much poo pooing it. You know this will be when we're swept away, or all of our 6 trees come tumbling down. We thought about going to the supermarket, but if we lose power, why would we want to have stocked up on food? boring! at least that's the hope.
Yesterday was my birthday. Don't you wish at least once a week you could go back to when you were 6 and just do it all over. That makes me sound unhappy, which I'm not. But... there are the few things I would change.
I turned 44. Where the hell did the time go. When I think about being a teenage (which I'd like to think I still act like) we're talking 26 years ago I was 18. DAMN!!!! Yesterday at work, I slipped on a step. I didn't fall, but I scraped my ankle on the step, and bruised my arm where I caught myself. To top that off, I kid you not, but I was a little stiff. FROM SLIPPING ON A STEP. If my birthday didn't make me feel old, that sure did!!!

School starts in one week. I think we're all ready to get back into the swing of things. I know I've voiced my dissatisfaction with Ben's day care. I guess when you're son is in a class of 5 with 4 aides and a teacher, there's little out there that compares. Here's to this being Ben's break out year. I think he's going to have one. maybe not this year, but I do know they'll come the time when he's verbal. He's physically able to say and do everything, and when he's engaged, or he wants something, the words and ideas flow free. He's impressive. I just know they'll come the day when he sees the reward for communication. To say the words, Ben! please be quiet! Oh, how I long for that! And I say that figuring one day, I'll say be careful for what you wish for!

Well, to all those on the East Coast.... Hold on tight.... We may be in for a wild ride..... And if so, can I stay at your house, because I didn't prepare in the slightest...lol

Thursday, July 28, 2011

Just been lazy

It has been like forever!
I'm not good at this blogging thing. I can type like the devil, but, it really seems to take some initiative to open up the page and put down the thoughts.
I have my bloggers I look at daily, and I'll tell ya, I really respect the fact they can get out a funny, entertaining, etc thought daily. I just don't have it in me. It's a shame too, cause my Ben is one entertaining guy. Some of his "routines" are things only a mother could love...lol

Ben:
Ben is currently in his extended school year program. It lasts for 5 weeks and runs Mon-Thurs 9-2. His regular school teacher teaches it, and the aide that he was attached to at his after school program is working with him as well. It's a blessing to have people who are invested in Ben work with him. From there he goes to a day care. I'm not thrilled with the day care. I don't even blame them. I think they try, but..... I went to pick Ben up one day this summer, and he had pinched another child. He actually acts out a lot there. They're not sure if it's the amount of activity, noise, etc, or they just don't pick up on his cues, but..... he's a little jack the ripper there.
Well, when I asked the "teacher" what she had done/said to Ben after he had put his hands on another child, she said she told the child he didn't know better and to just leave him alone. huh.....The last thing you want is the other child to see him has a blathering idiot who is voilent. Nor do I want the other children to just ignore Ben and leave him even more alone. Yet, I looked into this young girls face and could see how she was proudly reltaing her solution, and thought she had solved everything. Exhausting.
Ben will never go there again. He needs to be in a special needs camp. Again, we're in a metro area, with several to choose from. We have a JCC here with an open arms camp. Children with special needs are given a one on one and do all the same activities as the main stream kids. These one on ones are teachers or college students, so they're very good at getting them active. There's a college close by with students in teaching courses who have the same premise. Picture Scarlett O'Hara beating the ground, and there I am. As god is my witness, he'll never sit in this day care again....wahhhh.
Aside from that, I've regained the pole position of his affection. I slice of time went by when the world revolved around Daddy. But now.... Here's Mommy! Petty, but I like it this way!!!!!\
HAAA!
Me -
I feel pretty good. I'm off the steroid (15 lbs later) Between the steriod and quitting smoking, my waistline took a BEATING this summer. I'm going to try and work on that, I'm taking a shot everyday, and my nuerologist hopes we never meet again. I do as well.