I watched a U-Tube video today that had me in tears.
http://www.youtube.com/watch?v=1iSlok6muY0&feature=player_embedded
Think before you speak. So easy to say, so easy to forget. I watched it, and then decided to forward it to others. "Others" consisted of quite a diverse group. Of course there was my husband, but along with him were several co-workers. Some who may get why I would send it, others who probably thought.. "What the Hell?"
I even had a reply of "Why is the queen of sarcasm suddenly getting so sincere and sentimental?" The dirty secret is..... I was torn about sending it out. It was emotional to me, and choosing who to send it to... little do they know, but they were all chosen for a reason. Whether it was because I could see them using the video to teach someone else, they had small children they could teach, or whether it was because I had heard them use the word in the past.... all were chosen for a reason. I almost just kept it to myself and didn't want to use it, deal with it, talk about it..... Sometimes it's hard
I sent it to Bens teacher, to my old director who's wife is a teacher, It went to three states.
Is the idea of dropping the "R" word new? No. Lot's of movements out there, sign up and pledge, etc. but this teenager crying over the ideas others have of her brother was heartbreaking.
I see the world has changed since I was a teenager. I'm 44 now, and when I was in high school there were no inter-racial couples. I remember 1 gay classmate in a high school of thousands.
Today.... these things don't even seem to register to teens. It's so normal (at least in my area) There are several inter-racial couples, and I work with many teens, with a percentage being gay. None of this decides whether they are accepted. They don't seem to need to hide it anymore. And of course I think thank god. I can't imagine the gay classmates I had who were too ashamed of themselves to live a life, (these are my beliefs) that they were born to live. Life is so hard, and to have to fake huge chunks of your life.... exhausting.
Anyway, my hope is that people continue accepting differences. Where interacting and accepting someone that may have been considered a dork or "retarded" 25 years ago, there continues to be a push toward individuality, whatever that may be.
There will always be shitty people out there. That's a community, but at Ben's school I see kids from 6-12 who enjoy Ben, make an effort with Ben, and they'll never know how grateful to them I am.
Thursday, September 15, 2011
Wednesday, August 31, 2011
mmmmmm..... dog......
We got our dog a dog. Stupid huh?
I think our dog was even saying he didn't want it. Either way, my husband (yeah you know the type... I want it, I want it, but I'll not walk it or clean up after it), decides Fletcher needs a pal. It is true that we are not the jogger, biker, get out there and exercise type, but then again, neither is Fletcher. Guy likes nothing better than to sit with his face pressed up against the AC vent. He looks like he has asthema, when in fact all he has is "fat-ass" I think it's contagious, because with the exception of Ben, everyone in our family has it.
Anyhoo... we go to the pound and ask for a medium size dog. Well... Jenks is not what I would consider medium. He's 10 months old and 50 lbs. Can I tell you he's as skinny as sh*t! Vet expects him to put on another 20lbs. 70lb dog does not = medium. When we got him home he was coughing. We thought Kennel Cough, which will right itself, but after 2 nights of hacking we take him to the vet. While we're there Brent and I are congradulating ourselves on this well behaved dog we got. (1/2 price by the way... the shelter was having a sale)375.00 dollars later, 2 antibiotics and a cough medicine.... wtf! Well.... we did not get ourselves a calm pet. The thing was sick. 36 hours into antibiotics and he went nuts!!!!
He's getting better. We've had him snap at Fletcher over a bone (I threw it in the trash), peed on our floor.... Drug his ass out every hour on the hour to teach him the right place to do it...What was I thinking?
Everday, I brace myself to walk in the door, knowing the two nuts waiting behind the door are going to come at me fast. mmmmmm you know you're home when you can smell dog!
I think our dog was even saying he didn't want it. Either way, my husband (yeah you know the type... I want it, I want it, but I'll not walk it or clean up after it), decides Fletcher needs a pal. It is true that we are not the jogger, biker, get out there and exercise type, but then again, neither is Fletcher. Guy likes nothing better than to sit with his face pressed up against the AC vent. He looks like he has asthema, when in fact all he has is "fat-ass" I think it's contagious, because with the exception of Ben, everyone in our family has it.
Anyhoo... we go to the pound and ask for a medium size dog. Well... Jenks is not what I would consider medium. He's 10 months old and 50 lbs. Can I tell you he's as skinny as sh*t! Vet expects him to put on another 20lbs. 70lb dog does not = medium. When we got him home he was coughing. We thought Kennel Cough, which will right itself, but after 2 nights of hacking we take him to the vet. While we're there Brent and I are congradulating ourselves on this well behaved dog we got. (1/2 price by the way... the shelter was having a sale)375.00 dollars later, 2 antibiotics and a cough medicine.... wtf! Well.... we did not get ourselves a calm pet. The thing was sick. 36 hours into antibiotics and he went nuts!!!!
He's getting better. We've had him snap at Fletcher over a bone (I threw it in the trash), peed on our floor.... Drug his ass out every hour on the hour to teach him the right place to do it...What was I thinking?
Everday, I brace myself to walk in the door, knowing the two nuts waiting behind the door are going to come at me fast. mmmmmm you know you're home when you can smell dog!
Friday, August 26, 2011
Hurricanes.... phhttttt!
Live with a whirling dervish and you wonder what all the fuss is about? I have to say, I live in the Phila region, and the newscasters are constantly trying to get ratings with the weather. Last weekend ( I couldn't make this sh*t up) John Beloris, the ultimate ass is saying he's never seen anything like this on his radar, in all his years, blah blah blah. It consisted of a 2 hour thunderstorm. Nothing exciting, nothing momentous, just a thunderstorm.
Now this week... Irene. Which happens to be my mothers name, and yes... she can be quite..... welll, I'll leave that for another day.
Anyhoo... my husband and I are pretty much poo pooing it. You know this will be when we're swept away, or all of our 6 trees come tumbling down. We thought about going to the supermarket, but if we lose power, why would we want to have stocked up on food? boring! at least that's the hope.
Yesterday was my birthday. Don't you wish at least once a week you could go back to when you were 6 and just do it all over. That makes me sound unhappy, which I'm not. But... there are the few things I would change.
I turned 44. Where the hell did the time go. When I think about being a teenage (which I'd like to think I still act like) we're talking 26 years ago I was 18. DAMN!!!! Yesterday at work, I slipped on a step. I didn't fall, but I scraped my ankle on the step, and bruised my arm where I caught myself. To top that off, I kid you not, but I was a little stiff. FROM SLIPPING ON A STEP. If my birthday didn't make me feel old, that sure did!!!
School starts in one week. I think we're all ready to get back into the swing of things. I know I've voiced my dissatisfaction with Ben's day care. I guess when you're son is in a class of 5 with 4 aides and a teacher, there's little out there that compares. Here's to this being Ben's break out year. I think he's going to have one. maybe not this year, but I do know they'll come the time when he's verbal. He's physically able to say and do everything, and when he's engaged, or he wants something, the words and ideas flow free. He's impressive. I just know they'll come the day when he sees the reward for communication. To say the words, Ben! please be quiet! Oh, how I long for that! And I say that figuring one day, I'll say be careful for what you wish for!
Well, to all those on the East Coast.... Hold on tight.... We may be in for a wild ride..... And if so, can I stay at your house, because I didn't prepare in the slightest...lol
Now this week... Irene. Which happens to be my mothers name, and yes... she can be quite..... welll, I'll leave that for another day.
Anyhoo... my husband and I are pretty much poo pooing it. You know this will be when we're swept away, or all of our 6 trees come tumbling down. We thought about going to the supermarket, but if we lose power, why would we want to have stocked up on food? boring! at least that's the hope.
Yesterday was my birthday. Don't you wish at least once a week you could go back to when you were 6 and just do it all over. That makes me sound unhappy, which I'm not. But... there are the few things I would change.
I turned 44. Where the hell did the time go. When I think about being a teenage (which I'd like to think I still act like) we're talking 26 years ago I was 18. DAMN!!!! Yesterday at work, I slipped on a step. I didn't fall, but I scraped my ankle on the step, and bruised my arm where I caught myself. To top that off, I kid you not, but I was a little stiff. FROM SLIPPING ON A STEP. If my birthday didn't make me feel old, that sure did!!!
School starts in one week. I think we're all ready to get back into the swing of things. I know I've voiced my dissatisfaction with Ben's day care. I guess when you're son is in a class of 5 with 4 aides and a teacher, there's little out there that compares. Here's to this being Ben's break out year. I think he's going to have one. maybe not this year, but I do know they'll come the time when he's verbal. He's physically able to say and do everything, and when he's engaged, or he wants something, the words and ideas flow free. He's impressive. I just know they'll come the day when he sees the reward for communication. To say the words, Ben! please be quiet! Oh, how I long for that! And I say that figuring one day, I'll say be careful for what you wish for!
Well, to all those on the East Coast.... Hold on tight.... We may be in for a wild ride..... And if so, can I stay at your house, because I didn't prepare in the slightest...lol
Thursday, July 28, 2011
Just been lazy
It has been like forever!
I'm not good at this blogging thing. I can type like the devil, but, it really seems to take some initiative to open up the page and put down the thoughts.
I have my bloggers I look at daily, and I'll tell ya, I really respect the fact they can get out a funny, entertaining, etc thought daily. I just don't have it in me. It's a shame too, cause my Ben is one entertaining guy. Some of his "routines" are things only a mother could love...lol
Ben:
Ben is currently in his extended school year program. It lasts for 5 weeks and runs Mon-Thurs 9-2. His regular school teacher teaches it, and the aide that he was attached to at his after school program is working with him as well. It's a blessing to have people who are invested in Ben work with him. From there he goes to a day care. I'm not thrilled with the day care. I don't even blame them. I think they try, but..... I went to pick Ben up one day this summer, and he had pinched another child. He actually acts out a lot there. They're not sure if it's the amount of activity, noise, etc, or they just don't pick up on his cues, but..... he's a little jack the ripper there.
Well, when I asked the "teacher" what she had done/said to Ben after he had put his hands on another child, she said she told the child he didn't know better and to just leave him alone. huh.....The last thing you want is the other child to see him has a blathering idiot who is voilent. Nor do I want the other children to just ignore Ben and leave him even more alone. Yet, I looked into this young girls face and could see how she was proudly reltaing her solution, and thought she had solved everything. Exhausting.
Ben will never go there again. He needs to be in a special needs camp. Again, we're in a metro area, with several to choose from. We have a JCC here with an open arms camp. Children with special needs are given a one on one and do all the same activities as the main stream kids. These one on ones are teachers or college students, so they're very good at getting them active. There's a college close by with students in teaching courses who have the same premise. Picture Scarlett O'Hara beating the ground, and there I am. As god is my witness, he'll never sit in this day care again....wahhhh.
Aside from that, I've regained the pole position of his affection. I slice of time went by when the world revolved around Daddy. But now.... Here's Mommy! Petty, but I like it this way!!!!!\
HAAA!
Me -
I feel pretty good. I'm off the steroid (15 lbs later) Between the steriod and quitting smoking, my waistline took a BEATING this summer. I'm going to try and work on that, I'm taking a shot everyday, and my nuerologist hopes we never meet again. I do as well.
I'm not good at this blogging thing. I can type like the devil, but, it really seems to take some initiative to open up the page and put down the thoughts.
I have my bloggers I look at daily, and I'll tell ya, I really respect the fact they can get out a funny, entertaining, etc thought daily. I just don't have it in me. It's a shame too, cause my Ben is one entertaining guy. Some of his "routines" are things only a mother could love...lol
Ben:
Ben is currently in his extended school year program. It lasts for 5 weeks and runs Mon-Thurs 9-2. His regular school teacher teaches it, and the aide that he was attached to at his after school program is working with him as well. It's a blessing to have people who are invested in Ben work with him. From there he goes to a day care. I'm not thrilled with the day care. I don't even blame them. I think they try, but..... I went to pick Ben up one day this summer, and he had pinched another child. He actually acts out a lot there. They're not sure if it's the amount of activity, noise, etc, or they just don't pick up on his cues, but..... he's a little jack the ripper there.
Well, when I asked the "teacher" what she had done/said to Ben after he had put his hands on another child, she said she told the child he didn't know better and to just leave him alone. huh.....The last thing you want is the other child to see him has a blathering idiot who is voilent. Nor do I want the other children to just ignore Ben and leave him even more alone. Yet, I looked into this young girls face and could see how she was proudly reltaing her solution, and thought she had solved everything. Exhausting.
Ben will never go there again. He needs to be in a special needs camp. Again, we're in a metro area, with several to choose from. We have a JCC here with an open arms camp. Children with special needs are given a one on one and do all the same activities as the main stream kids. These one on ones are teachers or college students, so they're very good at getting them active. There's a college close by with students in teaching courses who have the same premise. Picture Scarlett O'Hara beating the ground, and there I am. As god is my witness, he'll never sit in this day care again....wahhhh.
Aside from that, I've regained the pole position of his affection. I slice of time went by when the world revolved around Daddy. But now.... Here's Mommy! Petty, but I like it this way!!!!!\
HAAA!
Me -
I feel pretty good. I'm off the steroid (15 lbs later) Between the steriod and quitting smoking, my waistline took a BEATING this summer. I'm going to try and work on that, I'm taking a shot everyday, and my nuerologist hopes we never meet again. I do as well.
Tuesday, June 21, 2011
can't comment
I haven't been able to comment on my blog, or anyone else's as well. Don't know if it's me, or if it's the site, but I tend to blame others so..... Damn this internet world.
I completed my 3 days of soli-medorol infusion. It's 1000 mg of steriod iv'd into you. This was done at home. Can you even believe it? A nurse came out to the house, put a port in my arm (which was FANTASTIC!) not one ounce of discomfort the whole time. He then taught Brent how to hook up the bags of IV and to flush the line 2x a day. Brent went at it like a pro. I can't believe it. I don't know if I would have been able to do it. I get all shaky etc.
I had no side effects with the exception of a bad taste when drinking liquids. We were able to go about our buisness all weekend long, and I even slept. I had read comments by others who had had the treatment and there were several bad experiences. I was prepared for the worst, but thankfully, didn't have it.
This morning I began a regimine of 20mg of prednisone for 90 days. This is alot, and due to my having active lesions. Why 1000 mg didn't effect me, but this pill has me doing jumping jacks I don't know. It's not too bad though. My doc said some people can tolerate it, others can't. If I find myself having a tough time, he'll take me off of it. I plan on giving 120% though.
That's me.
Then there's the real star of my show... Benjamin.
Ben's last day of school was yesterday. No more kindergarten..... whhaaahhh! Now I feel old. (Which I am!)
He'll go to day care, which I'm sure I've said in the past in nothing more then a holding pen for kids. Don't think he really gets very much out of it at all. There tends to be a turnover, and the help is not as trained as I would like. BUT..
Ben doesn't mind going. He does get out of the car happily which means the world to us. They do let him totally slack there, but summer is called vacation time.... right????
Ben will start his extended school year July 5th and take him throught the first week of August. Then it's just a few more weeks of slacking till we're right back in Sept again. Crazy how fast the time goes.
I've been seeing improvements in Ben daily. He has the best personallity. All of his aids at school and daycare tell me Ben's a favorite. When there's subs, or new people they gravitate to him. When he goes to his after school program the typical kids notice everything about him. And it's pretty much all postive. (At least that's what the steriods are telling me.... lol)
Thanks to all who sent well wishes. I can't tell you how much I appreciate it.
Any advise? Please feel free. I know we're all different... but... it helps!
I completed my 3 days of soli-medorol infusion. It's 1000 mg of steriod iv'd into you. This was done at home. Can you even believe it? A nurse came out to the house, put a port in my arm (which was FANTASTIC!) not one ounce of discomfort the whole time. He then taught Brent how to hook up the bags of IV and to flush the line 2x a day. Brent went at it like a pro. I can't believe it. I don't know if I would have been able to do it. I get all shaky etc.
I had no side effects with the exception of a bad taste when drinking liquids. We were able to go about our buisness all weekend long, and I even slept. I had read comments by others who had had the treatment and there were several bad experiences. I was prepared for the worst, but thankfully, didn't have it.
This morning I began a regimine of 20mg of prednisone for 90 days. This is alot, and due to my having active lesions. Why 1000 mg didn't effect me, but this pill has me doing jumping jacks I don't know. It's not too bad though. My doc said some people can tolerate it, others can't. If I find myself having a tough time, he'll take me off of it. I plan on giving 120% though.
That's me.
Then there's the real star of my show... Benjamin.
Ben's last day of school was yesterday. No more kindergarten..... whhaaahhh! Now I feel old. (Which I am!)
He'll go to day care, which I'm sure I've said in the past in nothing more then a holding pen for kids. Don't think he really gets very much out of it at all. There tends to be a turnover, and the help is not as trained as I would like. BUT..
Ben doesn't mind going. He does get out of the car happily which means the world to us. They do let him totally slack there, but summer is called vacation time.... right????
Ben will start his extended school year July 5th and take him throught the first week of August. Then it's just a few more weeks of slacking till we're right back in Sept again. Crazy how fast the time goes.
I've been seeing improvements in Ben daily. He has the best personallity. All of his aids at school and daycare tell me Ben's a favorite. When there's subs, or new people they gravitate to him. When he goes to his after school program the typical kids notice everything about him. And it's pretty much all postive. (At least that's what the steriods are telling me.... lol)
Thanks to all who sent well wishes. I can't tell you how much I appreciate it.
Any advise? Please feel free. I know we're all different... but... it helps!
Friday, June 17, 2011
so that's how it feels to be diagnosed...
I just was diagnosed with MS.
I swear I still can't believe it. I've decided the route for me to take is a factual business type road. I've read up on MS, treatments, prognosis's, etc.
None of these things make me freakin happy. Or devestate me either. Yes, you can have it both ways.
History: I felt numb on the left side of my body. From mid trunk down my leg. It was as if someone drew an invisable line around me. I work at a retirement community in HR. After conducting an interview for a C.N.A, I was talking to our Assistant Director of Nursing, and mentioned this oddity. I thought it may be a pinched nerve, or just that I was sitting wrong at my desk. Nothing to even begin worrying about. She on the other hand had STROKE going on in her mind. She didnt' voice that so not to scare me, but strongly suggested I call my Dr immediately. I did. The medical assistant who answered the phone declined to give me an appointment instead instructing me to go to the ER immediately. That's when he said it sounds like a stroke.
I went to the ER close to my home and was taken back immediately. Trust me, I was responsive, clear, functional, etc. The one thing that got me seen was as I was explaining the numbness, beneath my left eye became numb as well.
The ER doc decided to run the gamut of tests. CAT scans, MRI, X-Rays. After a bit of time, I did let them know I had to leave by 5:15 to pick up Ben from daycare. I left with a perscription for Percocet (I have no pain, but... what the hell!) and the suggestion to see an orthopedist for a suspected pinched nerve.
I was home with Ben for about a 1/2 hour when the ER doc called me to tell me the nueroligist had looked at my MRI and suspected MS. My reaction - Get the fuck out here. This does not happen to me or anyone I know. False alarm. Not worried. He wanted me to see a nueroligist right away. He's actually friends with my primary and had called him at home. He also got my docs' cell phone # for me to call first thing the next day.
Well..... I got to tell you, he was right. Is that what happened? no. but he was right.
My primary and I decided what's the big hurry? If I've had this, what's a few days going to matter. It does. but... live and learn.
I went to see my nueroligst. He's an old guy. Thinks he's funny too. He reviewed my MRI, tested my reflex's and decided I have MS. This news was delivered in a way I didnt' get. I thought he had given my a clean bill of health. When I asked him why he wanted me to get additional MRI's he said because you have MS. With a smile. My answer was "wait, what?"
Anyhoo.... I went lastweek, two different days, to get cervical and thorasic MRI's. as well as an updated Brain MRI with contrast. I had made an appt with my nuero for Wed, forgetting that I conduct trainings from 8:30-3:30. I called to reschedule. They gave me an appt for June 30th. That was cool with me. I had that appt for approx 20 minutes before the Dr's office was calling saying... a no... we need you in here. Sound silly? I then asked for a phone conference. Let's just get this over with. a no... you need to come in. Now I don't know about you, but at this point, I'm pretty sure this isn't going to be good.
Well I researched what I could, informed myself of the basics and felt pretty prepared. There are several types of MS. Some worse then others. I guess I'll eventually progress to those types, but for right now I have your basic MS.
My Doc told me I had developed new lesions in my brain since my original MRI three weeks ago. His exact words are "You're bad!" I said, "Oh, because I tried to postpone my appt?". His answer, and remember.... ALWAYS with a smile. "No. Did you read the results of your MRI? You're bad". Now again. I try to limit my profanity, but.... what the fuck! Is that your idea of bedside manner. Yet.... it works for me. I asked him something in a fog, and his answer was, "We'll fix it" well alrighty then.
The fix is tough. Starting tomorow, I'll have a one hour infusion for three days of high levels of steriods. A nurse will come out to the house, set me up, and then Sunday and Monday, they're expecting me to do it on my own. Great......
After that, I'll be on oral steriods for three months. Also, I've been perscribed an injectible med for the rest of my life. The cost is over 45,000 per year so my husband damn well better keep his job with his great benefits! otherwise... screwed.
I went on the web to research the med. There weren't any negative comments with the exception of the price. The usual side effects are site irritation. When you inject it hurts/stings for 5-15 minutes, and after a while it will leave indentations in your injection site. I'm 44, and have officially given up my bikini bod. That part I'll live with.
So.... MS, daily injectibles, unsure future.....
What else you got for me?
I swear I still can't believe it. I've decided the route for me to take is a factual business type road. I've read up on MS, treatments, prognosis's, etc.
None of these things make me freakin happy. Or devestate me either. Yes, you can have it both ways.
History: I felt numb on the left side of my body. From mid trunk down my leg. It was as if someone drew an invisable line around me. I work at a retirement community in HR. After conducting an interview for a C.N.A, I was talking to our Assistant Director of Nursing, and mentioned this oddity. I thought it may be a pinched nerve, or just that I was sitting wrong at my desk. Nothing to even begin worrying about. She on the other hand had STROKE going on in her mind. She didnt' voice that so not to scare me, but strongly suggested I call my Dr immediately. I did. The medical assistant who answered the phone declined to give me an appointment instead instructing me to go to the ER immediately. That's when he said it sounds like a stroke.
I went to the ER close to my home and was taken back immediately. Trust me, I was responsive, clear, functional, etc. The one thing that got me seen was as I was explaining the numbness, beneath my left eye became numb as well.
The ER doc decided to run the gamut of tests. CAT scans, MRI, X-Rays. After a bit of time, I did let them know I had to leave by 5:15 to pick up Ben from daycare. I left with a perscription for Percocet (I have no pain, but... what the hell!) and the suggestion to see an orthopedist for a suspected pinched nerve.
I was home with Ben for about a 1/2 hour when the ER doc called me to tell me the nueroligist had looked at my MRI and suspected MS. My reaction - Get the fuck out here. This does not happen to me or anyone I know. False alarm. Not worried. He wanted me to see a nueroligist right away. He's actually friends with my primary and had called him at home. He also got my docs' cell phone # for me to call first thing the next day.
Well..... I got to tell you, he was right. Is that what happened? no. but he was right.
My primary and I decided what's the big hurry? If I've had this, what's a few days going to matter. It does. but... live and learn.
I went to see my nueroligst. He's an old guy. Thinks he's funny too. He reviewed my MRI, tested my reflex's and decided I have MS. This news was delivered in a way I didnt' get. I thought he had given my a clean bill of health. When I asked him why he wanted me to get additional MRI's he said because you have MS. With a smile. My answer was "wait, what?"
Anyhoo.... I went lastweek, two different days, to get cervical and thorasic MRI's. as well as an updated Brain MRI with contrast. I had made an appt with my nuero for Wed, forgetting that I conduct trainings from 8:30-3:30. I called to reschedule. They gave me an appt for June 30th. That was cool with me. I had that appt for approx 20 minutes before the Dr's office was calling saying... a no... we need you in here. Sound silly? I then asked for a phone conference. Let's just get this over with. a no... you need to come in. Now I don't know about you, but at this point, I'm pretty sure this isn't going to be good.
Well I researched what I could, informed myself of the basics and felt pretty prepared. There are several types of MS. Some worse then others. I guess I'll eventually progress to those types, but for right now I have your basic MS.
My Doc told me I had developed new lesions in my brain since my original MRI three weeks ago. His exact words are "You're bad!" I said, "Oh, because I tried to postpone my appt?". His answer, and remember.... ALWAYS with a smile. "No. Did you read the results of your MRI? You're bad". Now again. I try to limit my profanity, but.... what the fuck! Is that your idea of bedside manner. Yet.... it works for me. I asked him something in a fog, and his answer was, "We'll fix it" well alrighty then.
The fix is tough. Starting tomorow, I'll have a one hour infusion for three days of high levels of steriods. A nurse will come out to the house, set me up, and then Sunday and Monday, they're expecting me to do it on my own. Great......
After that, I'll be on oral steriods for three months. Also, I've been perscribed an injectible med for the rest of my life. The cost is over 45,000 per year so my husband damn well better keep his job with his great benefits! otherwise... screwed.
I went on the web to research the med. There weren't any negative comments with the exception of the price. The usual side effects are site irritation. When you inject it hurts/stings for 5-15 minutes, and after a while it will leave indentations in your injection site. I'm 44, and have officially given up my bikini bod. That part I'll live with.
So.... MS, daily injectibles, unsure future.....
What else you got for me?
Thursday, May 26, 2011
Beautiful!
I am a cheap mom! I'm no longer ashamed of this, and have come full circle from throwing the money around (which we never had), to not going anywhere unless we have a coupon.
So...
With Ben being autistic, there are tons of opportunities to do things. Carnivals, the zoo, the movies One is going to the Discovery Museum 4x a year on selected Sunday nights for an open arms evening. They are great. You never have to worry about explaining your child, and if he steals the ball from another kid, the parents know you're on it.
Ben enjoyed a new activity this go around. Rock climbing. He had tried it with no success the last time we were there, but this time... a regular mountain goat. His limited ability at communication be damned, he let us know he was proud. He stood up on these faux rocks stating... beautiful. great, good job. All of which I was to repeat with fervor! And I was happy to do it! He really is a funny kid.
We bought him new sneakers a couple of weeks ago. I tell him how fast he runs and how high he jumps with his new shoes. He's constantly looking at them when he runs and impressing himself. Too Damn Cute!!!!
Tomorow is field day at Bens school. I will be there from 9-3 assisting Ben through obstacle courses, and god only knows what. I hope I don't get too competative... lol Of course the whole time I expect Ben to be obbsessing on we'll get McDonalds after. Anytime we do ANYTHING, he thinks McDonalds will follow. Does that make me a bad mom? I just can't so no to that squishy face of his.... I cook most of the week... wahhhh. oh well.
So...
With Ben being autistic, there are tons of opportunities to do things. Carnivals, the zoo, the movies One is going to the Discovery Museum 4x a year on selected Sunday nights for an open arms evening. They are great. You never have to worry about explaining your child, and if he steals the ball from another kid, the parents know you're on it.
Ben enjoyed a new activity this go around. Rock climbing. He had tried it with no success the last time we were there, but this time... a regular mountain goat. His limited ability at communication be damned, he let us know he was proud. He stood up on these faux rocks stating... beautiful. great, good job. All of which I was to repeat with fervor! And I was happy to do it! He really is a funny kid.
We bought him new sneakers a couple of weeks ago. I tell him how fast he runs and how high he jumps with his new shoes. He's constantly looking at them when he runs and impressing himself. Too Damn Cute!!!!
Tomorow is field day at Bens school. I will be there from 9-3 assisting Ben through obstacle courses, and god only knows what. I hope I don't get too competative... lol Of course the whole time I expect Ben to be obbsessing on we'll get McDonalds after. Anytime we do ANYTHING, he thinks McDonalds will follow. Does that make me a bad mom? I just can't so no to that squishy face of his.... I cook most of the week... wahhhh. oh well.
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